“Each year, the NFXF [National Fragile X Foundation] and the fragile X community celebrate all of…

“Each year, the NFXF [National Fragile X Foundation] and the fragile X community celebrate all of July as Fragile X Awareness Month, with the goal of expanding public awareness and educating those who are in a position to help make a difference,” the Foundation states on it’s event website. “We strive to do this every day, but once a year, in July, we bang our drum even louder to raise awareness about some very Xtraordinary people.”

Specifically, the organization seeks to raise awareness about the disease and those it affects, the risks of being a genetic carrier, and the importance of clinical trial participation. The NXFX also hopes to educate physicians about their roles in diagnosis and care, underscore teachers’ roles in reaching and engaging fragile X patients, helping policymakers understand how they can they help the community, teach therapists about differences and similarities between fragile X and autism, and involve more scientists in fragile X research.